The U.S. Department of Health and Human Services issued final revisions to the Federal Policy for the Protection of Human Subjects (the Common Rule). It implements new steps to better protect human subjects involved in research, while facilitating research and reducing burden, delay, and ambiguity for investigators.
Final Revisions to the Common Rule
Remember, Library staff conduct expert searching for IRB protocols and continuing reviews. Contact us
This winter, researchers at National Jewish Health have been featured in two health news stories that have aired on National Public Radio’s “Morning Edition” and “All Things Considered.” See below for links to the stories and to read the radio transcript or hear the recording.
Doctor’s Say Parents Shouldn’t Smoke Pot Around Kids | Read the Transcript
Are Food Allergies on the Rise? Experts Say They Don’t Know | Read the Transcript
Two journals are now available on the online catalog at the Tucker Medical Library.
The Journal of Biological Chemistry has been publishing current research advancing knowledge of “the molecular and cellular basis of biological processes” for over 100 years.
Science Translational Medicine seeks to advance medicine by acting as a platform that fosters collaboration among “basic, translational, and clinical research practitioners and trainees,” helping to bridge the gap between research and treatment and between researchers, industry, and policy makers.
In this, the season of giving, we should remember our own Frances Wisebart Jacobs, Mother of Charities. It was at her urging, along with Rabbi William Stern Friedman and a group of dedicated supporters incorporated as the Jewish Hospital Association, that a hospital was built to “alleviate suffering and render aid to the distressed” and to admit Jews and non-Jews alike. After the financial setbacks of the 1893 “Silver Crisis” the hospital found new support from B’nai B’rith, and on December 10, 1899 dedication ceremonies were held for the National Jewish Hospital for Consumptives. While the Denver Post account names a young woman from Minnesota as the first patient, the hospital ledger* has a “string maker” from Boston, Eli Brown, as the first recorded admission. Though hospital policy was to admit patients for long-term care, Mr. Brown stayed for only seven days, having been released for “continuous violation of rules.”
Learn more about the history of National Jewish Health by visiting our Patient and Visitor Resource Guide and the Our History page on the National Jewish Health website. Then head to the Beck Archives at the University of Denver for more artifacts from the early days of National Jewish.
Researchers looking for places to publish and manage data have a few options in the US Department of Health & Human Services Registry of Patient Registries, the Open Knowledge Foundation’s Datahub, and the German Research Foundation’s re3data.
The Registry of Patient Registries allows registry owners to provide information “intended to promote collaboration, reduce redundancy, and improve transparency among registry holders.” The Agency for Healthcare Research and quality intends that this registry provides useful information for work involving clinicaltrials.gov.
Fore more general datasets, Datahub is a CKAN-based tool that allows users to “browse and find the data they need, and preview it using maps, graphs and tables – whether they are developers, journalists, researchers, NGOs, citizens or your own colleagues.” Datahub also allows users to maintain their own datasets and to sign up to receive updates about datasets related to groups of interest.
re3data is another option for storing and accessing data from a variety of academic fields. It offers a permanent storage solution for scholarly data and “promotes a culture of sharing, increased access and better visibility” of information.
Researchers who use Endnote on their desktop or through Web of Science can now use Endnote online (formerly Endnote Web) to conveniently create, manage, and share working bibliographies, to format research, and even to match manuscripts to appropriate journals. More information is available through endnote’s online training or on YouTube.
When headlines risk misinforming the public, the Health News Review acts as a valuable resource, parsing out the story behind the sound bite. The website’s team of reviewers tackle news stories and news releases, run a blog that evaluates the media’s portrayal of various health related headlines, and even offer toolkits to help readers become informed consumers of health news (and to help journalists become better purveyors of public health information!).
The writers of the site recognize that certain topics (stem cell research, genetics and biotech) tend to be sensationalized by the media, and that medical research is often far more complex than its depiction in a popular news outlet. As a result, consumers of health information are often left relying on simplified information that leaves out crucial details. Articles like “7 Words (and more) You Shouldn’t Use in Medical News” and “Tips for Understanding Studies” seek to inform all involved in health news, from its creation to its consumption.
The site seeks to “improve public dialogue about health care by helping consumers critically analyze claims about health care interventions and by promoting the principles of shared decision-making reinforced by accurate, balanced and complete information about the tradeoffs involved in health care decisions.” The content of the Health News Review allows us to demand more from medical news in general, as well as to deepen the patient-doctor dialogue of the day-to-day.